Thursday, April 27, 2017

Days 9-10

   I remember around this time, I started playing every scenerio in my mind for Berkley. The doctors had told us to plan on him not going home until my due date, July 20th... that was 101 days away.... 101! In that moment, the world stands still for a minute as you try to digest that. Still even now, that feels like a lifetime from today. Of course, if he does really well he may can go home earlier, but it won't be next month. All of our plans for him have changed. We will have to always be super careful with him around people that are sick, doctor appointments for years once he goes home, and knowing there could be other issues that pop up at any time. (Dont be surprised if you are rquired to wash your hands as soon as you walk in our home lol)  I wouldnt change any of this if it means having him here. I just pray he can grow up being a little boy - playing in sprinklers, playing football with his big cousin, Ty, chasing lightning bugs, learning his numbers and his ABCs, etc. Its the small things that as a parent you never think about not having. There are tons of "what if" questions for preemie parents. Berkley is doing great and there has been nothing mentioned of learning or physical disabilities, etc but these are things that cross my mind. It started getting scary around this time with his murmur and oxygen rates fluctuating. God has seen us through. Berkley started really changing day to day so I took lots of pictures. 

DAY 9
Dear Berkley, 
   YOU OPENED YOUR EYES TODAY!!! That one little peek made my heart explode. Your eyes are very sensitive to the light so you will squeeze them shut and open just for a second. It's amazing to watch you seeing light for the first time. Your feedings are going up today too! 
   Aunt Dewanna (your great aunt) sent me this scripture today. Deuteronomy 3:16. God's promise to us very similar to the verse Joshua 1:9 I gave to you in the beginning. Scripture discusses being strong, courageous, not afraid because God will never leave us. Always remember he is right there with you. Sarah Jo, your JuJu, told me the other day words that calmed me. She said, "God has got Berkley in His hands. So even though he doesn't get to feel his momma, I guarantee he feels his Heavenly Father." She is so right....God is there whispering in your ear, "it's okay." when I can not.


DAY 10
   I sat with you awhile this morning while you were all nestled in your Giraffe isolator.  I talked a lot to you and just watched you sleep. (I sneak peeks through your cover when I can.) You are starting to have facial expressions. You raise your eyebrows when you hear me talk, it makes me laugh. 
  Your heart murmur is still there. The doctors are still trying medicine and I am praying specifically for it to go away and your lungs to get stronger. It's going to take time, but God is working. They also did a head x-ray today to check for brain bleeds. We will get the results tomorrow. It will be rated level 1-4 and we are expecting something there just for your size and delivery. Saying a prayer that it is the lower end. 
   Saved the best for the end.... Dad got Kangaroo time today! He got to hold you for the first time. We sat and just loved on you for the longest. Dad talked to you and I listened  (and laughed a lot). Maybe you'll get his wit. We can't wait to take you home. We are going to make it through this. 

Sleep sweet. Grow big. Be brave. I love you. 

Eyes are open now!

Daddy's first hold


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